Every June 7th, World Tourette Syndrome Awareness Day is commemorated. This date was established with a fundamental purpose: to raise awareness, demystify, and empathize with those living with this neurobiological disorder, breaking down the social stigmas that often accompany it.
The date was chosen in honor of Dr. Mary Robertson, a prominent neuropsychiatrist who dedicated much of her career to the clinical study of Tourette’s and the unconditional support of patient associations.
What is Tourette Syndrome really?
It is a genetic and neurological condition that usually manifests in childhood or adolescence (generally before the age of 18). Its main characteristic is the presence of tics: involuntary, rapid, and repetitive movements or sounds that the person cannot easily control.
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Most common types of Tics:
- Motor tics: Frequent blinking, shrugging, facial grimacing, or head jerking.
- Vocal tics: Throat clearing, grunting, humming, or repeating words.
The Coprolalia Myth: Cinema and television often associate Tourette’s exclusively with involuntarily saying swear words or insults (coprolalia). The reality is that it only affects a small percentage of those diagnosed (less than 15%). The vast majority experience physical tics or everyday sounds.
Associated conditions
Tourette’s rarely travels alone. It frequently coexists with other neurodivergent conditions that sometimes have a greater impact on day-to-day life than the tics themselves:
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- ADHD (Attention Deficit Hyperactivity Disorder)
- OCD (Obsessive-Compulsive Disorder)
- Anxiety and difficulties in emotional regulation.
The value of this day: Breaking the stigma
People with Tourette Syndrome often face misunderstandings at school, work, and in public spaces. A lack of information causes their tics to be mistaken for “rudeness” or “attention-seeking,” exposing them to isolation or bullying (bullying).
June 7th reminds us that support, patience, and inclusion in social and school environments are the best tools for those with Tourette’s to develop fully and lead a completely productive life.
