{"id":501011,"date":"2026-02-25T23:25:30","date_gmt":"2026-02-26T03:25:30","guid":{"rendered":"https:\/\/deultimominuto.net\/en\/uncategorized\/february-28-rare-disease-day-a-call-for-awareness-and-inclusion\/"},"modified":"2026-02-25T23:25:30","modified_gmt":"2026-02-26T03:25:30","slug":"february-28-rare-disease-day-a-call-for-awareness-and-inclusion","status":"publish","type":"post","link":"https:\/\/deultimominuto.com\/en\/uncategorized\/february-28-rare-disease-day-a-call-for-awareness-and-inclusion\/","title":{"rendered":"February 28: Rare Disease Day, a call for awareness and inclusion"},"content":{"rendered":"\n<p class=\"wp-block-paragraph\"><strong>World Rare Disease Day<\/strong> is commemorated every <strong>February 28<\/strong> (and 29 in leap years), with the aim of raising awareness about rare diseases and promoting equitable access to diagnosis, treatment, and medical care for those who suffer from them.<\/p>\n\n\nThis date was established in 2008 by the organization EURORDIS (European Organisation for Rare Diseases), and over time it has become a global event, celebrated in more than 100 countries.\n\n\n<h3 class=\"wp-block-heading\"><strong>What are rare diseases?<\/strong><\/h3>\n\n\n\n<p class=\"wp-block-paragraph\">Rare diseases are those that affect a small number of people compared to the general population. In many countries, a disease affecting less than 1 in 2,000 people is defined as rare. However, there are more than <strong>7,000 rare diseases<\/strong> identified, and together they affect millions of people worldwide.<\/p>\n\n\n\n<h5 class=\"wp-block-heading\"><strong>We recommend reading: <a href=\"https:\/\/ab.deultimominuto.net\/internacionales\/madre-protagoniza-protesta-cali\/\" target=\"_blank\" rel=\"noopener\">Mother stages protest at EPS headquarters in Cali over lack of medication for children with rare diseases<\/a><\/strong><\/h5>\n\n\n\n<p class=\"wp-block-paragraph\"><strong>Some common features:<\/strong><\/p>\n\n\n\n<ul class=\"wp-block-list\">\n<li>Most are of genetic origin.<\/li>\n\n\n\n<li>Many appear in childhood.<\/li>\n\n\n\n<li>They are usually chronic, progressive, and potentially life-threatening.<\/li>\n\n\n\n<li>Diagnosis can take years.<\/li>\n\n\n\n<li>There is limited access to specialized treatments.<\/li>\n<\/ul>\n\n\n\n<h3 class=\"wp-block-heading\"><strong>Importance of Commemoration<\/strong><\/h3>\n\n\nThe World Rare Disease Day seeks:\n\n\n<ul class=\"wp-block-list\">\n<li>Raise awareness in society about the reality of patients and their families.<\/li>\n\n\n\n<li>Promote inclusive public policies.<\/li>\n\n\n\n<li>Encourage scientific research.<\/li>\n\n\n\n<li>Promote early detection and comprehensive support.<\/li>\n<\/ul>\n\n\nEducational campaigns, lighting of emblematic monuments, medical conferences, solidarity walks, and informative activities are carried out in different countries to make this cause visible.\n\n\n<h3 class=\"wp-block-heading\"><strong>A Call for Empathy and Inclusion<\/strong><\/h3>\n\n\nBeyond statistics, this day represents a call for solidarity, understanding, and respect towards those living with a rare condition. Information, research, and social commitment are fundamental to improving their quality of life.\n\nThe motto for this day usually varies each year, but always maintains a focus on health equity and social integration.\n\nIf you wish, I can prepare a press release or a graphic design for this date.","protected":false},"excerpt":{"rendered":"<p>World Rare Disease Day is commemorated every February 28 (and 29 in leap years), with the aim of raising awareness about rare diseases and\u2026<\/p>\n","protected":false},"author":133556,"featured_media":0,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"_jetpack_newsletter_access":"","_jetpack_dont_email_post_to_subs":false,"_jetpack_newsletter_tier_id":0,"_jetpack_memberships_contains_paywalled_content":false,"_dum_aida_pretitle":"","_dum_aida_subtitle":"","_dum_aida_city":"","_dum_aida_author":"","_dum_aida_caption":"","_dum_aida_captionauthor":"","_dum_aida_quote":"","_dum_aida_breakdowntitle":"","_dum_aida_breakdowntext":"","_jetpack_memberships_contains_paid_content":false,"footnotes":"","_members_access_role":[],"_members_access_error":""},"categories":[1],"tags":[],"class_list":["post-501011","post","type-post","status-publish","format-standard","hentry","category-uncategorized"],"acf":[],"jetpack_sharing_enabled":true,"jetpack_shortlink":"https:\/\/wp.me\/phj1q1-26kP","jetpack_featured_media_url":"","dum_api":{"author_name":"Yerandi Santana","author_image":"https:\/\/deultimominuto.com\/wp-content\/uploads\/2026\/02\/cropped-WhatsApp-Image-2026-02-13-at-5.35.07-PM-96x96.jpeg","categories_name":["Uncategorized"],"featured_media_url":null},"_links":{"self":[{"href":"https:\/\/deultimominuto.com\/en\/wp-json\/wp\/v2\/posts\/501011","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/deultimominuto.com\/en\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/deultimominuto.com\/en\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/deultimominuto.com\/en\/wp-json\/wp\/v2\/users\/133556"}],"replies":[{"embeddable":true,"href":"https:\/\/deultimominuto.com\/en\/wp-json\/wp\/v2\/comments?post=501011"}],"version-history":[{"count":0,"href":"https:\/\/deultimominuto.com\/en\/wp-json\/wp\/v2\/posts\/501011\/revisions"}],"wp:attachment":[{"href":"https:\/\/deultimominuto.com\/en\/wp-json\/wp\/v2\/media?parent=501011"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/deultimominuto.com\/en\/wp-json\/wp\/v2\/categories?post=501011"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/deultimominuto.com\/en\/wp-json\/wp\/v2\/tags?post=501011"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}