Santiago.– Dayron Almonte Socías, the child diagnosed with spinal muscular atrophy (SMA), received his first dose of the medication required to treat the disease this Thursday, following months of efforts led by his family to access the expensive treatment.
The information was confirmed by her mother, Génesis Socías, who explained that the medication has already been delivered and that the treatment is being administered daily.
As detailed, in this first delivery they received a 75-milliliter bottle, from which two milliliters are administered daily, an amount sufficient for approximately two months of treatment.
Socías indicated that, once that period ends, they must manage a new application to obtain another vial and ensure that the minor continues to receive the medication without interruptions.
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Dayron’s family began this struggle in 2025, when they made public the difficulty of accessing the treatment due to its high cost, a situation that generated a broad show of support from different sectors of society.
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Currently, the child remains admitted to the Dr. Arturo Grullón Regional University Children’s Hospital, where he is receiving medical care for pneumonia, while continuing treatment for spinal muscular atrophy.
